Support groups for Cystic Fibrosis

For any patient in the hospital, the need for support from others is important to the patient’s emotional health as well as their overall well-being. Support groups are organizations of people who have a common disorder and meet to discuss their experiences, share ideas, and provide emotional support for one another. In my research for Cystic Fibrosis, I found a primary website that lists several secondary websites for support groups.

The primary website is by Cystic Fibrosis Research Inc. (CFRI)- their mission is to continue Cystic Fibrosis research, provide educational and personal support, and spread awareness of cystic fibrosis. They want to inform, engage, and empower the Cystic Fibrosis community to reach the highest possible quality of life.

There are several secondary websites offered from the primary website. The first is a support group from the Cystic Fibrosis Research Inc. (CFRI). This support group is facilitated by a social worker who is knowledgeable in issues facing CF caregivers. This support group is open to those able to participate in person, as well as to participants nationwide by telephone. They offer a range of events and programs that provide information, support and vital resources, so as to help people navigate the challenges associated with cystic fibrosis. The second is Heroes of Hope support group. This website seeks to recognize and honor unique individual patients with Cystic Fibrosis who strive to live full, productive lives and serve as role models to  others, all while managing their own healthcare needs. This support group allows people to nominate their hero. The third is the support group by the Living Breath Foundation. This foundation is a non-profit, volunteer-led organization helping patients living with Cystic Fibrosis. They provide localized help to individuals and families in California and Arizona with financial assistance and educational scholarships. Their goal is to alleviate some of the stressors that that can along with Cystic Fibrosis. They give any body the opportunity to receive scholarships as well as donate money to their cause. 

http://www.cfri.org/cfsupport.shtml

http://www.cfliving.com/

http://www.cfri.org/support.shtml

http://www.dailystrength.org/c/Cystic-Fibrosis/support-group

http://www.heroesofhope.com//